Tag Archives: MS

Suzy Creamcheese honey what’s got into ya?

It’s the 60s man don’t you get it?

Frank+Zappa++Captain+Beefheart+cptbeefheart frankzappa Suzy Creamcheese honey whats got into ya? photo

Captain Beefheart and Frank Zappa, giving your Indie musicians a run for their money


There was nothing more far-out and mainstream all at once than Frank Zappa and the Mothers of Invention.

The word “mothers” would have been a red flag not to let your mother hear any of the Zappa albums. “Hey mom, listen to this cool album Freak Out by Frank Zappa and the Mothers of Invention.”

Zappa could actually get his LPs released, all 60 of them. Plenty of other groups like The Fugs were just too far out to hit the mainstream.

Zappa produced Captain Beefheart, who died yesterday at the ripe old age for a rocker of 69. Don Van Vliet, known as Captain Beefheart on stage, lived with MS and died from complications of his disability. When rock music petered out, he went back to his first love – art.

Zappa died at 53 from prostate cancer which seems ironically mundane for such a crazy rocker.

Despite listening the Freak Out and We’re Only In It For the Money, I don’t remember any of the songs except those two lines. “Suzy Creamcheese where are you” and “Suzy Creamcheese honey what’s got into ya?” They were “in” jokes that separated the “cool” from the “square.”

RIP Captain Beefheart and Frank Zappa.

Controversial MS treatment works for Island woman

Despite lack of support from Health Canada and medical establishment Donna Farrell feels better

Donna Farrell Controversial MS treatment works for Island woman photo

Donna Farrell feels better after Zamboni treatments (photo Eastern Graphic)

A Peters Road woman traveled to Poland to get the controversial treatment for MS and says she feels better. The trip and treatment cost her more than $9,000 but she doesn’t regret it.

The MS Society, Health Canada and Health PEI did not support her operation.

“I just know I feel great. I’m a lot happier.”  Mrs Farrell told the Eastern Graphic

Donna Farrell contracted MS in 1997 and the disease made her fatigued, often in pain and created a walking disability.

She now feels energized a month after the treatment, walks without a cane and has less pain. She is taking physiotherapy to make her leg muscles and tendons more flexible after years of little use.

“I could feel the blood pumping through my body,” Mrs Farrell said about the operation’s effects.
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New Brunswick Man Wins Back Disability Supplement

Good news as NB government reverses loss of $1,000 benefit over $1.70

Shawn Graham 325 New Brunswick Man Wins Back Disability Supplement photo

New Brunswick Premier Shawn Graham

Mike Kennedy had an annual $1,000 disability supplement returned in a common sense decision by the Graham Liberal government of New Brunswick.

Kennedy who is disabled with MS and cannot work lives on an annual disability pension of  $ 7,000. When the federal pension went up $1.76 a month or $21 a year, the Province of New Brunswick cut off Kennedy’s annual $1,000 disability supplement that pays for fuel oil and other large living expenses.

“Those New Brunswickers who are living with disabilities, if their income is a few dollars over, we simply reduce the benefit by that number of dollars, but they still get it, and that’s important because they need it,” said Lamrock, who ordered changes to the cut-off policy after hearing about Kennedy’s case. In addition, the disability supplement will now be given out in monthly payments instead of a lump sum, he said.”   Continue reading

Possible cure for MS could be one trial away

Johns Hopkins has found a way to erase a faulty immune system

Reported by: Barbara Smith ABC 4 News

SALT LAKE CITY (ABC 4 News) A Utah woman is about to being a medical journey that she hopes will save her life. Michelle Colledge has Multiple Sclerosis, a disease that causes paralysis, blindness, and death. Johns Hopkins is testing a new treatment for this debilitating disease that so far, is dramatically effective. Michelle Colledge has been accepted as part of the study of this new and very aggressive treatment.

Michelle was diagnosed on Valentines Day 2007. She says, “The only way to describe those first couple of months was absolute terror, and crying at night for several hours, and just thinking my life was over.” The young mother developed lesions on her brain and spine, her own immune system, charged with protecting her, had turned against her and become the enemy. Dr. Adam Kaplin, M.D. from Johns Hopkins explains; “What these people have, are these periods of time where their brains and spinal cords are under attack and their optic nerve.” He says no one knows why it happens, but doctors believe the immune system is tricked in reaction exposure to bacteria, viruses, or even a vitamin D deficiency. Read the rest of the story

London’s “Night Stalker” was Jehovah’s Witness

night stalker 196x270 Londons Night Stalker was Jehovahs Witness photo

Remanded: Delroy Grant leaves Greenwich Magistrates Court in South London photo: MailOnline

Alleged rapist and criminal Delroy Grant looked after disabled wife

Since 1992 London police have been looking for the masked man who raped, assaulted and robed more than 100 elderly women and men.

Wearing a balaclava, he would attack single people living alone and left only his DNA. He would torture and threaten his victims over four or five hours shining a light in their faces and beating them,

On Monday morning Delroy Grant, 52, appeared in Magistrates Court to answer 22 charges of rape and indecent assault. He said little other than his name.

Grant was arrested Sunday morning based on good old police work and forensic science. He was in his car late at night in Shirley, Croyden not far from where he lived in Brockley.

While he left no fingerprints, he did leave DNA samples that identified him as someone from the Windward Islands in the Caribbean.

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NB Government refuses to budge on the man who got $1.76 too much

Shawn Graham golfing 495 NB Government refuses to budge on the man who got $1.76 too much photo

Premier Shawn Graham of New Brunswick

Sounds like time for a letter writing campaign to Premier Graham to show some reasonableness for those in dire straits

CBC NB confirms the New Brunswick government will not bend for Mike Kennedy who lives with MS on CP Disability and who got cut off by New Brunswick when his pension cheque went $1.75 above the threshold.

See: Moncton man loses disability supplement over $1.76

Aiton, the director of communications for the Department of Social Development, said it’s not possible to be flexible in this situation.

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Moncton man loses disability supplement over $1.76

Shawn Graham 495 Moncton man loses disability supplement over $1.76 photo

Shawn Graham Liberal Premier of New Brunswick and Minister responsible for the Premier's Council on the Status of Disabled Persons photo: Andrew Meade / The Brunswickan

File under: bureaucratic abuse of the disabled

From CBC Moncton A Moncton man has lost his $1,000 disability supplement from the New Brunswick government because his federal disability pension is $1.76 a month above the provincial cut-off.

Mike Kennedy, who has multiple sclerosis, said he offered to give back the extra federal money every month.

‘It sort of makes you feel like a second-class citizen.’— Mike Kennedy

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