Disabled in name, but not in life

Film documents innovative course

By Jennifer Schwartz
Globe Correspondent / August 31, 2008

After a decade of teaching first-graders about physical disabilities, Cambridge Friends School teacher Maggie Doben wanted to reflect on her program’s progress, so she decided to film the intensive, eight-week curriculum – where 6- and 7-year-olds learn basic sign language, map out wheelchair routes, interact with visitors, and ask difficult questions.

“I wanted to document the program from beginning to end to capture the transition,” said the 33-year-old Watertown resident, who was wearing a silver ring with “learn” embossed in Braille and sitting on a brightly painted, kid-sized chair in the school library during an interview last week.

The film, “Labeled Disabled,” begins by highlighting students’ misconceptions about physical disabilities. One child doesn’t know what the word “disability” means; another thinks a little person is called a gnome. By the end, they’re excited to tell their parents how one man can draw flowers by holding a pen in his toes.

httpv://www.youtube.com/watch?v=qOnllbrKie8&hl=en&fs=1 Continue reading

Cool things can happen

Journal Pioneer posted Un Canadien Errant

Un Canadien Errant

Un Canadien Errant

A lot of cool things happen. Right now I’m in a creative place. Seeing my work in print is a thrill. To see a video in the Journal Pioneer is a new step.

I’m writing up three blogs a day, stories, and songs every day. I work on Blog layouts which can be fun and creative.

Social activism is like marketing – condense the message into a sound bite and interest people in the story. Continue reading

Removing parking limits accessibility

UPEI, disabled parking to be removed in September

UPEI, disabled parking to be removed in September


LETTERS TO THE EDITOR, August 25, 2008

Editor: (This letter was printed essentially the same in the Journal Pioneer, West Prince Graphic and Eastern Graphic)

Arguments have been put forward that the decision to remove accessible parking from the UPEI campus is an improvement in accessibility. UPEI disabled parking spots to be removed in September 2008 Simple logic tells us that reasoning is wrong. Forcing people with a disability to walk further is not better for them: it’s worse.

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Bill Lynch freak show not for disabled

Bill Lynch

In a previous article The Phony carnival war, we discussed appropriate associations with carnivals and persons with disabilities. We have a good example in our midst – Bill Lynch who ran the biggest carnival in the Maritimes for 50 years and still showed respect for those with disabilities.

The Bill Lynch Shows was the carnival in the Maritimes. Bill Lynch started his carnival business in the 1920′s. After leaving McNab’s Island in Halifax Harbour it became a traveling carnival and midway show. He played in the cities, big towns and small towns. After Lynch’s death the Show was owned by PEI’s Soggy Reid.

The Bill Lynch Show had a freak show, no doubt about it. It ran into the mid-1960′s by my recollection.

Lynch made sure that people with disabilities were treated with respect even when it cost him money. I know because he and his employees treated me with utmost respect. You didn’t have to ask for it: they gave it freely.

Lynch was a savvy man in a tough business. Yet he was a generous humanitarian. The Halifax Herald newspaper set up a memorial fund in his name and wrote “As operator of the Bill Lynch Shows, Mr. Lynch was always mindful of the needs of young people, particularly the mentally challenged. Many thousands of young people were given free rides on the midway, but more importantly were the many needy families he helped financially.”

Lynch had a simple way to make people with disabilities feel welcome but not on display as deviant. He closed the carnival for part of a day so only children with disabilities could attend. He didn’t want someone gawking at children who looked or walked differently or were in a wheelchair after they might have seen the side show.

It wasn’t an issue of inclusion. It was respect. We felt included, heck we got in for free. It was the same at the circus and Ice Capades. Don’t worry we felt included.

Those were special times. We could ride on any ride for free. They gave us cotton candy, drinks, and hot dogs. We were allowed to play the games and see anything we liked – except the freak show. It would have been bad taste.

When I was a teenager, I went to see the sideshow at night. I realized how hard it would have been on my friends like the boy who had web hands and feet and the other boy who couldn’t stop shaking.

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Bill Lynch freak show not for disabled

Lynch displayed sensitivity to people with disabilities by not associating them with deviancy. Lynch didn’t have training: he just had a kind heart and common sense.

Fast forward three decades to the 80′s. I was attending the Bill Lynch Show at Old Home Week. As I got on a ride with my children, the carny gave me back the tickets. He said “Your tickets are no good here.” It was the same kindness towards people with disability that Bill Lynch had. Tears came to my eyes as I felt that kindness and respect. I gave my tickets to some children at the gate.

From a gut feeling, I know that I don’t want to be associated with deviancy, to performing at a carnival. Bill Lynch would never have allowed it.

On an intellectual level we understand it does not build the self-worth of the person with a disability.

That knowledge and emotion builds in us a sense of propriety, what is the right thing to do.

It still makes me wonder why the PEI-Canadian Paraplegic Association not only held their event at a carnival but why they are defending it in the Guardian and making negative remarks about me personally? Three people have attacked me personally over this which is sad.

PEI-CPA could have gotten 100 times more awareness and publicity if they held the event in a neutral parking lot or shopping mall and invited the media. The CPA uses neutral settings in other cities in Canada. Why is Charlottetown subjected to this treatment?

An exceptional accomplishment

ED: most provinces in Canada provide coverage for drugs related to Parkinson’s, except PEI. A presentation was made to the Disability Services Review Committee requesting support.

The Journal Pioneer

Editor

From Aug. 14 to 18 Luke McIver, a young man from Kinkora, ran across P.E.I. in support of Parkinson’s.

Luke McIver, with his parents Debbie and Paul, enjoyed a break in Summerside Saturday afternoon, before hitting the road to finish his Parkinson’s fundraising run in Tignish Sunday. Jim Brown/Journal Pioneer

I first met Luke in early July when he decided to undertake the 245-kilometre run. His determination and spirit were infectious. Just having graduated high school and entering UPEI this fall, Luke could have spent the summer many other ways. Instead, he opted to make a difference as his grandfather had Parkinson’s and his grandmother now lives with Parkinson’s.

Luke’s journey was close to the equivalent of six full marathons in only four days. Luke’s parents, grandparents, friends and teammates all supported his efforts.

It was inspiring to see so many young people from Luke’s high school and soccer teams joining him along the way. Parkinson’s is now being diagnosed in people from their late 20s through early 50s, as Young Onset Parkinson’s is being better understood. Continue reading

PEI Autism assessments restrict services for children

ED: The Common Sense Revolution of 1995 in Ontario instituted a series of administrative hurdles for those requesting social services. PEI was quick to adopt many of those reforms which cut services despite indications demand was rising.

The administrative restriction discussed here is local assessment. If assessment is a criteria for autism supports and if the government controls the number of local assessment persons, then it can reduce the number of children eligible for assistance. Parents are thwarted if they get valid assessments from experts who are not licensed by the Province. See Demystifying the Boundaries of Public Law: Policy, Discretion and Social Welfare by Professor Lorne Sossin Associate Dean of Law University of Toronto. Continue reading

A passionate call for mental health services

God help us if a Deputy Minister on PEI ever said anything that wasn’t approved by the Liberal Premier’s Office. PEI’s new government keeps a tighter rein on free speech than Prime Minister Stephen Harper or Joseph Stalin. Unlike Stalin, anyone who speaks out won’t get jailed: they just lose their jobs. Ed

Deputy minister makes rare appeal for public support

By JOHN GILLIS Health Reporter
Sat. Aug 23 – 4:46 AM

Nova Scotia’s deputy health minister called on mental health organizations and the public Friday to help her light a fire under politicians to do more to help people with mental illnesses.

’All of us collectively need to be doing something much more significant to make this a burning bridge issue for decision makers.’ cheryl doiron Deputy health minister

In a passionate off-the-cuff speech at the opening of the Canadian Mental Health Association’s national conference in Dartmouth, Cheryl Doiron said her department has put more money into mental health services over the years, but spending has declined as a proportion of the overall health budget.

“It’s very hard to get it to be the primary issue, particularly for politicians who are making budget decisions . . . because they are not getting the same pressure about mental health as they get about cancer and coronary disease and diabetes,” she said.

“We, working from the opportunity we have within government, organizations such as (the national association) and the Nova Scotia (association) and other groups, and all of us collectively need to be doing something much more significant to make this a burning bridge issue for decision makers.”

Mental health spending accounts for just over 3.5 per cent of the $3.2-billion provincial health budget.

Ms. Doiron said the relatively small amount of funding for those services means the province is failing to provide “absolutely essential help” to children and others.

She gave the example of an adolescent mental health program at the IWK Health Centre. The in-patient treatment lasts 12 to 18 months. But the 13- to 19-year-olds who might benefit from the intensive program have to wait that long just to be admitted.

Ms. Doiron said she pleaded the case to cabinet and was able to secure extra funding of $1.5 million this year and about $2 million in subsequent years to expand to 18 beds from 12.

An enduring bias against people with mental illness means people are often reluctant to speak about their conditions, and society doesn’t know they should be treated just like people with physical ailments, Toronto psychiatrist David Goldbloom told the conference in his keynote address.

“I think one of the challenges around mental illness is that its unique properties include affecting our thinking, our moods and our behaviour: the very dimensions that define us as individuals,” he said. “That makes it a lot tougher to separate the illness from the person.”

And while growing numbers of people report in surveys that they have had direct experience with mental illness, either personally or through a friend or relative, the perception that people with mental illnesses are dangerous or violent has increased, Dr. Goldbloom said.

That attitude is exemplified by reporting on events such as the recent beheading of a passenger on a Greyhound bus and crime dramas like CSI and Law and Order, he said.

“The reality of mental illness, its mundane reality, is virtually never depicted,” he said. “The same applies to the newspapers, because somebody recovering from mental illness or somebody simply making a great adaptation to mental illness is about as newsworthy as a plane landing safely at the airport.”

Dr. Goldbloom said research shows that negative perceptions are formed very early, so young children should be a focus of efforts to erase stigmatization.

Workplaces should be another major target, he said.

Finding and keeping meaningful work goes a long way toward helping a person with mental illness develop a sense of self and social connections; mental illness is the leading cause of short-term disability keeping people out of the workforce, Dr. Goldbloom said.

The Mental Health Commission of Canada, of which he is vice-chairman, says mental illness drains $51 billion from the Canadian economy each year.

But there is hope that negative attitudes can be broken down, Dr. Goldbloom said.

He recalled that when he was an intern in the early 1980s, hospital staff were “terrified” of the gay men who appeared with symptoms of what was later identified as HIV/AIDS, only touching them with triple-gloved hands.

“Think of how far it has come in the ensuing 25 years,” Dr. Goldbloom said. “It’s really an extraordinary social transformation. Mental illness has not come anywhere near as far as HIV.”

( jgillis@herald.ca)

Always on Stage A note of confidence

After 10 years, the City Stages Youth Festival in downtown Charlottetown is going stronger than ever

Chris Budhan and Ian Toms, still playing jazz at Always on Stage (photo: Stephen Pate 2010)

By Sally Cole, Charlottetown Guardian

Chris Budhan gets excited when he talks about the first time he performed on Victoria Row.

In 1998, he and some musical friends from Colonel Gray High School in Charlottetown formed a seven-piece band called Los Guapachosos, won a Battle of the Bands contest and busked that summer on the popular pedestrian street where people sit at outdoor cafes.

“It was my first experience performing in front of a large audience outside the school system. And I got hooked.”

“That summer I became interested in becoming a professional musician. I also became interested in my own artistic development. And I started a summer tradition,” says Budhan, now a doctoral student in music education at the University of Texas.

Everything about that summer seemed to strike a chord with him.  Continue reading

Singer songwriters perform at Always on Stage

Although the City Stages Youth Festival has become a tradition, it is not staid.

Singer songwriters Jessica Palmer and Stephen Pate (photo: Sally Cole, Guardian)

From Guardian, by Sally Cole

Although the City Stages Youth Festival has become a tradition, it is not staid. It’s ever evolving, says Buddan.

“We want to expand the scope of the program to represent multiple musical genres.

“So this summer we invited Stephen Pate to co-ordinate the singer-songwriter series,” says Buddan.

Working with five slots and six musicians, Pate, who is active in the Charlottetown music scene, selected some Island singer-songwriters to be part of the program and then endeavored to give the artists opportunity to perform. Continue reading

Only a pawn in their game

To understand the problems of the disabled on PEI one must look at the underlying relationships of the people who feed off the disability industry.

These people are often in positions of trust and power. They make the public appearance of being there for people with disabilities. When their power and prestige is threatened, however they fight back.

Myrtle Jenkins Smith - often the mastermind behind lack of progress on disabilities

This summer the issue of accessible parking came up at UPEI. This seems like a simple issue. However, the PEI Canadian Paraplegic Association has a member on the UPEI Access-Ability committee and they are blocking progress. There is more.

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